Australian Centre for Health Engagement, Evidence and Values (ACHEEV) invites you to attend a symposium on Participatory Approaches to Ethical Governance of Health Data Sharing in Australia.
Friday, October 23, 10:00 AM - 5:00 PM
Aspire Conference and Function Centre, Innovation Campus,
University of Wollongong, NSW
Advances in digital technologies, analytics and artificial intelligence have created vast quantities of health data, and enabled their use for purposes ranging from clinical care to research and innovation. The Australian Centre for Health Engagement, Evidence and Values (ACHEEV) has recently led projects that examined the complex ethical, legal and social implications of health data sharing, privacy, consent requirements, public benefit, data security, and data ownership. Our research has also highlighted the need for greater clarity in legal, ethical, and policy frameworks, as well as the importance of transparent governance and community engagement.
This full-day symposium will convene a diverse group of scholars from across disciplines and stakeholders from across health, research, policy, and community sectors to discuss participatory approaches to the ethical and regulatory governance of health data sharing in Australia.
This project is supported by the NSW Agency for Clinical Innovation and Digital Health CRC Limited (DHCRC). DHCRC is funded under the Australian Commonwealth's Cooperative Research Centres (CRC) Program.
International Keynote Speaker
Amy Darlington, Director, Policy Partners, United Kingdom. Amy specialises in deliberative engagement, participatory policy formation, strategy development and strategic communications and stakeholder engagement. She was the Engagement Lead for OneLondon, a collaborative of London’s five Integrated Care Systems. In 2020 OneLondon held a Citizen Summit, the world’s largest public deliberation on the use of health and care data.
Confirmed Speakers
Tara Dimopoulos-Bick, Stream Lead for Design, Capability and Experiential Evidence, Agency for Clinical Innovation, NSW Health.
Professor Louisa Jorm, Foundation Director, Centre for Big Data Research in Health, University of New South Wales.
Dr Felicity Flack, Senior Manager, Strategy and Services, Population Health Research Network.
Associate Professor Courtney Ryder, College of Medicine and Public Health, Flinders University.
Associate Professor Rebekah McWhirter, ANU College of Law, Governance and Policy.
Emeritus Professor Dianne Nicol, Faculty of Law, University of Tasmania
Dr Heidi Green, ACHEEV, University of Wollongong.
Dr Yves Saint James Aquino, ACHEEV, University of Wollongong.
The symposium will include a panel featuring members of an ACHEEV-led citizens' jury on health data sharing.
For queries, please message Dr Yves Saint James Aquino (yaquino@uow.edu.au) or Dr Heidi Green (hgreen@uow.edu.au).
Registration is free but space is limited. Please register as soon as you can.
Or copy this link: https://www.eventbrite.com.au/e/1992798489928?aff=oddtdtcreator
Travel and accommodation support for PhDs and ECRs
We are able to support a small number of PhD candidates and early career researchers in Australia working on ethical governance of health data sharing, preferably using participatory, deliberative or community-orientated approaches. We can fund full or partial interstate return flight and two-night accommodation in Wollongong. Please email Drs Aquino and Green with the following details:
Name
Current role (PhD, research fellow etc): For PhD students include year of commencement. For ECRs, please include year PhD was awarded.
Current affiliation, eg university, and location of university (to allow us to estimate cost of travel)
Description of project - 150 words max.